Another update
Heya,
I'm back after a long period of silence. In the meantime, I went back to my old GP (the one that said she had done everything) because I had another episode of neurological symptoms around Easter. This lead to a huge fight with my family, because there was this endless discussion of going to hospital yes or no. Eventually I ended up in the ER in a hospital that was 45 min away from where I live. It was rather traumatizing, let me just say: unfriendly doctors/staff, being treated as if I was faking everything and being discharged with the recommendation to see a psychologist because of "academic stress". Lol I was out of school for 5 months at that point. At least I had nice roommates and a few days away from my family.
Then, later in April, I had an appointment with a specialist neurology clinic who basically did nothing than talk to me and tell me "well you for sure have something but we have no idea what" and sent me home. I was supposed to go back there the beginning of this month, but stuff got messed up with my appointments so I didn't go and need to reschedule that. It's so frustrating how every doctor tells me the same thing, that even specialists are clueless and that I have to keep on fighting despite just wanting to give up. My last hope is the appointment with the geneticist in July, I really hope this will help me somehow.
But let's be a bit more positive, since my hospital stay during Easter I started to "get my life back". I still don't go to school but I made a study plan for summer break and I'm thinking about enrolling in an online course for A levels (biology, physics, chemistry), just in case I'll get too sick to attend regular classes again and to have another qualification. I started doign yoga again. Every day, and I add new poses regularly. I'm amazed how much better I feel since I started doing this! And finally, I made the decision to start learning an instrument, I just can't decide which one right now. Stay tuned friends, I'll make another post about my goals this week!
Until then, take care of yourselves ;)
The Walrus
I'm back after a long period of silence. In the meantime, I went back to my old GP (the one that said she had done everything) because I had another episode of neurological symptoms around Easter. This lead to a huge fight with my family, because there was this endless discussion of going to hospital yes or no. Eventually I ended up in the ER in a hospital that was 45 min away from where I live. It was rather traumatizing, let me just say: unfriendly doctors/staff, being treated as if I was faking everything and being discharged with the recommendation to see a psychologist because of "academic stress". Lol I was out of school for 5 months at that point. At least I had nice roommates and a few days away from my family.
Then, later in April, I had an appointment with a specialist neurology clinic who basically did nothing than talk to me and tell me "well you for sure have something but we have no idea what" and sent me home. I was supposed to go back there the beginning of this month, but stuff got messed up with my appointments so I didn't go and need to reschedule that. It's so frustrating how every doctor tells me the same thing, that even specialists are clueless and that I have to keep on fighting despite just wanting to give up. My last hope is the appointment with the geneticist in July, I really hope this will help me somehow.
But let's be a bit more positive, since my hospital stay during Easter I started to "get my life back". I still don't go to school but I made a study plan for summer break and I'm thinking about enrolling in an online course for A levels (biology, physics, chemistry), just in case I'll get too sick to attend regular classes again and to have another qualification. I started doign yoga again. Every day, and I add new poses regularly. I'm amazed how much better I feel since I started doing this! And finally, I made the decision to start learning an instrument, I just can't decide which one right now. Stay tuned friends, I'll make another post about my goals this week!
Until then, take care of yourselves ;)
The Walrus
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